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PATIENT ORGANIZATIONS in UK Acne Support Group PO Box 230 Hayes, Middlesex UBT OUT Reg. Charity No. 1026654. Telephone message service 0181 561 6868. Email: Alison@the-asg.demon.co.uk Website: http//www.m2w3.com/acne Bullous Pemphigoid Support Group 17 Barley Mount Redhills Exeter EX4 1RP CancerBACUP 3 Bath Place Rivington Street London EC2A 3JR Reg. Charity No. 1019719. Cancer Information Service open 9am-7pm Tel: 0171 833 2818 Fax: 0171 833 4963 Freephone cancer information helpline: 0800 132 905 Email: cancerlink@canlink.demon.co.uk Helpline freephone 0800 132 905 Changing Faces 1 & 2 Junction Mews Paddington London W2 1PN Reg. Charity No. 1011222 Tel: 0171 706 4232 Fax: 0171 706 4234 Contact a Family 170 Tottenham Court Road London W1P 0HA Reg. Charity No. 284912 Tel: 0171 383 3555 Fax: 0171 383 0259 Darier’s Disease Support Group (DARDIS) PO Box 36, Milford Haven Dyfed SA73 3YF Tel: 01646 695055 DEBRA (FOR epidermolysis bullosa ) DEBRA House 13 Wellington Business Park Dukes Ride Crowthorne Berkshire RG45 6LS Reg. Charity No. 284754. Tel: 01344 771961 Fax: 01344 762661 Email: debra.uk@btinternet.com Website: http://www.debra.org.uk Ehlers-Danlos Support Group 1 Chandler Close Richmond N. Yorks DL10 5QQ Reg. Charity No. 1014641. Tel/Fax: 01748 823867 Email: EDS_UK@compuserve.com/homepages/EDS_UK/Ehlers.htm Hairline International The Alopecia Patient’s Society Lyons Court 1668 High Street Knowle West Midlands B93 OLY Reg. Charity No. 1056204 Tel: 01564 775281. Fax: 01564 782270. Please enclose an A4 SAE. Herpes Viruses Association (SPHERE) and Shingles Support Society 41 North Road London N7 9DP Reg. Charity No. 291657. Tel: 0171 607 9661 (office and Minicom V) Tel: 0171 609 9061 (helpline – 24 hours access) Fax number available on request.
SUPPORT GROUPS FOR HIDRADENITIS SUPPURATIVA http://webhome.globalserve.net/hidecan http://homepages.tesco.net/~andy.dann/hspages/hidradenitis.html Ichthyosis Support Group 2 Copnor Woolton Hill Nr. Newbury RG20 9XH LUPUS UK St James House Eastern Road Romford Essex RM1 3NH Reg. Charity No. 1051610 Tel: 01708 731251 (5 lines) and 24 hour Answerphone. Fax@ 01708 731252. Lymphoedema Support Network St Luke’s Crypt Sydney Street London SW3 6NH Reg. Charity No. 1018749. Tel: 0171 351 4480. (answerphone out of hours) Fax: 0171 349 9809. Website: http://www.moneyshop.co.uk/charity/lymphoedema.htm National Eczema Society 163 Eversholt Street London NW1 1BU Reg. Charity No. 1009671. A company limited by guarantee registered in England No. 2685083. Tel: 0171 388 4097. Fax: 0171 388 5882. Website: http://www.eczema.org Neurofibromatosis Association 82 London Road Kingston on Thames Surrey KT2 6PX Reg. Charity No. 284653. Tel/Answerphone: 0181 547 1636. Fax: 0181 974 5601. Minicom: 0181 392 0184. Times: Monday – Friday; 9:00am – 5:00pm Email: nfa@zetnet.co.uk Website: http://www.users.zetnet.co.uk/neurofibromatosis MARC’s Line (for skin cancer) Resource Centre Royal South Hants Hospital Brinton Terrace Southampton SO9 4PE Tel: 01722 415 071. Pemphigus Vulgaris Network Flat C 26 St Germans Road London SE23 1RJ As the group has no funding please could you enclose a stamped addressed envelope. Pseudoxanthoma Elasticum Support Group (PiXiE) 15 Mead Close Marlow Bucks SL7 1HR Reg. Charity No. 284912. Tel: 01628 476687/486024. Fax: 01628 476687. Email: PXEeurope@aol.com Psoriasis Association Milton House 7 Milton Street Northampton NN2 7JG Tel: 01604 711129. Fax: 01604 792894. Psoriatic Arthropathy Alliance PO Box 111 St. Albans Hertfordshire AL2 3JQ Reg. Charity No.1051169. Tel/Fax: 01923 672837. (Telephone support is provided) Email: info@paalliance.org Website: http://www.paalliance.org Raynaud’s & Scleroderma Association 112 Crewe Road Alsager Cheshire ST7 2JA Reg. Charity No. 326306. Tel: 01270 872776. Fax: 01270 883556. Skin Deep 44 Hartwell Drive Kempston Bedfordshire MK42 8UY Tel: 01234 840013. Tissue Viability Society Glanville Centre Salisbury District Hospital Salisbury SP2 8BJ Reg. Charity No. 1041915. Tel: 01722 336262 Ext. 4057. Fax: 01722 325904. Email: tvs@dial.pipex.com Website: http://www.tvs.org.uk/main.html Tuberous Sclerosis Association Little Barnsley Farm Catshill Bromsgrove Worcestershire B61 0NQ Reg. Charity No. 1039549. Tel: 01527 871898. Email: tsassn@compuserve.com Website:http://ourworld.compuserve.com/homepages/tsassn Vitiligo Society 125 Kennington Road London SE11 6SF Reg. Charity No. 1069607. Tel: 0171 840 0855. Fax: 0171 840 0866. Email: all@vitiligosociety.org.uk Website: www.vitiligosociety.org.uk Wound Care Society PO Box 170 Huntingdon PE18 7PL Reg. Charity No. 1013304. Tel/Fax: 01480 434401. OTHER USEFUL ORGANISATIONS Ash Associates 112 St Martins Lane London WC2N 4AZ Tel: 0171 240 6005 FaxL 0171 240 8005 (Public Relations Consultancy to the Skin Care Campaign) Association of the British Pharmaceutical Industry 12 Whitehall London SW1A 2DY Tel: 0171 930 3477 Fax: 0171 747 1411 Email: abp@abpi.org.uk British Association of Skin Camouflage PO Box 202 Macclesfield SK11 6FP Tel: 01625 267880 Fax: 01625 267879 British Association of Dermatologists 19 Fitzroy Square London W1P 5HQ Tel: 0171 383 0266 Fax: 0171 388 5263 British Lymphology Society PO Box 1059 Caterham CR3 6ZU Reg. Charity No. 1042561 Tel: 01883 330253 Fax: 01883 330254 (for professional enquiries) Genetic Interest Group Farringdon Point 29-35 Farringdon Road London EC1M 3JB Reg. Charity No. 803424 Tel: 0171 430 0090 Fax: 0171 430 0092 Health & Safety Executive Rose Court 2 Southwark Bridge London SE1 9HS Tel: 0171 717 6000 Fax: 0171 717 6717 Health and Education Authority Trevelyan House 30 Great Peter Street London SW1P 2HW Tel: 0171 222 5300 Fax: 0171 413 8900 Long-Term Medical Conditions Alliance Unit 212, 16 Baldwin’s Gardens London EC1N 7RJ Reg. Charity No. 1057711 Tel: 0171 813 3637 Fax: 0171 813 3640 Physical Disabilities NHS Executive 5W20 Quarry House, Quarry Hill Leeds LS2 7UE Tel: 0113 254 5190 Fax: 0113 254 5306 Portcullis Research 3/19 Holmbush Road London SW15 3LE Tel: 0181 789 2798 Fax: 0181 789 0795 (Secretariat of the All Party Parliamentary Group on Skin and parliamentary advisors to the Skin Care Campaign.) Primary Care Dermatology Society PO Box 6, Princes Risborough HP7 9XD Tel: 01844 276271 Royal Pharmaceutical Society 1 Lambeth High Street London SE1 7JR Tel: 0171 735 9141 SHADE 77 Cloonmore Avenue Orpington Kent BR6 9LG Tel/Fax: 01689 855938 Skin Treatment & Research Trust (Start) Chelsea & Westminster Hospital Reg. Charity No. 298474 369 Fulham Road London SW10 9NH Tel: 0181 8174.
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